As a family I've limited experience of EHCP and I dutifully asked people's experiences in the usual meeting spots on Twitter and on Facebook. I confess to being genuinely surprised by the responses, both in quantity and passion. The challenges, frustrations and experiences that people shared were heartfelt and clearly were having a profound affect on the lives of their children and families. I'd not had such a notification tsunami on my phone since I'd asked about CAHMS.
In essence the responses could be broadly grouped thus:-
- Limited knowledge and understanding of the issues that adopted children faced in relation to trauma, loss, separation and developmental delay by School staff, Educational Psychologists and Local authorities. Often children's behaviour just perceived as bad or naughty therefore not reaching the threshold for EHCP.
- Challenges of gathering evidence due to waiting times for assessment or, again, lack of knowledge by professionals.
- Children falling below the threshold for a EHCP but above what school is willing, prepared and and able to support/tolerate. Parents caught between a rock and a hard place with some parents feeling forcing to home school or find and pay for alternative provision.
- Time delays, with families waiting months that lead to years caught in the machinery of the process.
- Adoptive parents feeling the need to 'chase' tangible and commonly understood diagnosis to reach EHCP thresholds (i.e. ADHD, autism etc).
- Children that got a EHCP but then not having access to the support or services that were identified in the plan.
- Challenges in the appeals process and the time, effort and stress that it brought to many families that were already struggling.
It was a long meeting that also incorporated the Education Sub Committee of the Adoption Support Group. We met with a representative of the DfE with advisory responsibilities for Special Educational Needs & Disabilities (SEND) and it was interesting to hear his perspective on some of the challenges that he was aware of. He noted that the vast majority of EHCP assessments are accepted but acknowledged that there could be less weighting given to Social, Emotional and Mental ill health, often the issues that adopted children are at higher risk of experiencing.
There was a lot discuss and in part the role of Adopter Voice is to share with a view to influence those in the position to change systems and policy not for AV to do the changing. As always the people that we have direct contact with at the DfE appreciate the challenges but they understand how to influence decision makers and groups of professionals. The shift in role of the Virtual Heads to encompass adopted children is a good example of how the views and experiences of individuals and groups influences key people and groups. They then go on to create change in a way that is beyond the control and experiences of the likes of me. So today there was some of that.
There were discussions around the Regionalisation agenda, inspection regimes, workforce development and the role of Adoption Panels was fed back and absorbed. As usual too much to say and some that can't be said.
There is a methodical and well intentioned process of improvement at play and again I thank you for all your patience and input.